Help & Support

We can provide financial support to families across the UK affected by neuroblastoma. The fund can support a child or young person’s physical or emotional welfare or a family in bereavement.

Our Support Bags are carefully created and contain specially selected items to support children and families during their hospital stays as well as items to provide comfort and entertainment.

Read the stories of children and young people who have been diagnosed with neuroblastoma, have completed treatment and are now in remission and doing the things they enjoy most in life.

This normally applies to Stage 1 patients, and most Stage 2 patients who are less than 12 months old and/or have no unfavourable genetic mutations.

This usually includes Stage 3 and Stage 4 patients, who are less than 12 months old and have no unfavourable features in the genes of their tumour.

This usually includes Stage 2, Stage 3, and Stage 4 where the patient is older than 12 months and/or has unfavourable features in the genes of their tumour.

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We understand the conflicting emotions that parents can feel when their child’s treatment ends. Our Family Support team have lived experience, and are here for you.

Our bereavement support varies based on your needs, but can include emotional, practical and financial support during palliative care and/or following the loss of a child.

We can help ease financial worries through the provision of our Big Love Fund and we also provide guidance on what you may be able to claim from other sources and charities.

For relapsed or refractory neuroblastoma, there is no standard treatment to guide parents through treatment decisions. We are here to help with our Redmapp website.